June 17, 2011

Hydroxyurea - Update

I went to the oncologist (I still can't believe I have an oncologist in my 30's!) last week and my platelet count is still high 650,000.  5,000 less than last month but not a great improvement.  He was hoping to be able to decrease my Hydroxyurea (HU) or see how I fared without taking the meds all together.  Instead, I need to stay on my 1,500 mg (3 pills) per day of HU, 1 baby aspirin per day and 1 Iron pill per day!

I told the doctor that all five kids will be home with me this summer, (no summer camp here, we are just trying to keep up with the bills), and he said I don't have to come in for another two months.  LOL!   =)

Hopefully, in two months time, my numbers will have come down enough to reduce my dose of HU!  I really don't want to have keep taking a chemo drug for 40 years!  The exhaustion is a lot to handle when you are trying to raise five kids.  Actually, scratch that, I think it would be a lot for anyone to handle.

No matter how I feel:  exhausted, overwhelmed, scared ...  the thing I feel the most is, BLESSED!

I am ALIVE!  I am with my family and while annoying, this is a disease I can live with for many, many years - Please G-D!

I will posts more updates soon.  I hope everyone is doing well!

- Shayna

June 3, 2011

Preschool Graduation

Our youngest daughter, graduated from preschool last night!  She's the youngest of four girls (13,11, 7 & 5), she's our baby girl.

To quote a song from one of my favorite movies:  Sunrise, Sunset, quickly fly the years!  Where is the little girl I carried?

All week long, people have been asking her if she is excited to graduate and her response is:  "What is there to be excited about?  I won't get to see my friends anymore and I am really going to miss my teachers!" 

She is a very loving, emotional, sensative, kind, caring, and feisty little girl and we wouldn't have her any other way!  She is our Princess and Beauty and we couldn't be more proud of her!

The days are long but the years fly by!  Before I know it, I will blink and it will be her wedding day!

- Shayna

June 1, 2011

Sore on Tongue and Sore Throat

I finally went to the doctor today, he says that I have some post nasal drip which is making my throat feel irritated.  My doctor said I should take Mucinex. 

The sore on the tongue was nothing, just a result of badly biting my tongue the other day.

I go to the hematologist/oncologist on Tuesday and I will post an update.

Getting ready for summer break.  I'm happy there will be no homework, unhappy that I will be the acting cruise director, for all five kids, for two months.   =)

I hope all is well with everyone!

- Shayna