I was putting my five year old daughter to bed tonight and she looked up at me and said,
"Mommy, I make your heart shine!"
There is nothing better!
I hope everyone is doing well.
- Shayna
February 28, 2011
February 23, 2011
Platelet Count Is Down To 530,000!
For the last two weeks my platelet count has dropped down to 530,000! Yippie! =) I am so happy.
When my journey with Essential Thrombocythemia began in January, my platelet count was about one million. I was put on 1000mg of Hydroxyurea, when that didn't work I went up to 1500mg and then finally a dose of 2500mg.
Now that my platelet count has dropped to decent levels (still high but much better than one million), the doctor has dropped my Hydroxyurea back down to 1500mg per day and I only have to go to the doctor's office every two weeks!
I am hoping things will continue to go well so that I can get off Hydroxyurea all together and just take one baby aspirin per day. The doctor said this is down the line a bit and when they do put me on aspirin only, it's really just a drug vacation and my platelet numbers will eventually go back up and I will have to take Hydroxyurea again. There is no cure for Essential Thrombocythemia. But for now, I will try to take it one day at a time.
I will continue to update everyone on my appointments.
I hope all is well with everyone!
- Shayna
When my journey with Essential Thrombocythemia began in January, my platelet count was about one million. I was put on 1000mg of Hydroxyurea, when that didn't work I went up to 1500mg and then finally a dose of 2500mg.
Now that my platelet count has dropped to decent levels (still high but much better than one million), the doctor has dropped my Hydroxyurea back down to 1500mg per day and I only have to go to the doctor's office every two weeks!
I am hoping things will continue to go well so that I can get off Hydroxyurea all together and just take one baby aspirin per day. The doctor said this is down the line a bit and when they do put me on aspirin only, it's really just a drug vacation and my platelet numbers will eventually go back up and I will have to take Hydroxyurea again. There is no cure for Essential Thrombocythemia. But for now, I will try to take it one day at a time.
I will continue to update everyone on my appointments.
I hope all is well with everyone!
- Shayna
February 21, 2011
Just Go With It - Great Movie!
I went to see the movie, Just Go With It, tonight and it was really FUNNY! It was cool funny, not gross funny. Anyone looking for a movie that will make them laugh out loud, should go see this movie.
I hope everyone had a great weekend!
P.S. - I go back to talk to the doctor on Tuesday and I will post about my appointment Tuesday night.
- Shayna
I hope everyone had a great weekend!
P.S. - I go back to talk to the doctor on Tuesday and I will post about my appointment Tuesday night.
- Shayna
February 16, 2011
February 14, 2011
Paresthesia (Pins and Needles) - Caused From Stress?
Lately, I have been wondering, is my Paresthesia (Pins and Needles sensations) caused by my Essential Thrombocythemia, Stress or could it be both?
I have noticed, a link, to the sensation being worse when I am stressed out. Another, odd link, I noticed is that the sensations are always located on my left side only! Hummmmmmm, I wonder?
Anyone have any thoughts?
I am going to ask the Doctor about it next week. I go back this Tuesday for blood work only.
For those of you who celebrate Valentine's Day, I hope it's filled with love and candy!
- Shayna
I have noticed, a link, to the sensation being worse when I am stressed out. Another, odd link, I noticed is that the sensations are always located on my left side only! Hummmmmmm, I wonder?
Anyone have any thoughts?
I am going to ask the Doctor about it next week. I go back this Tuesday for blood work only.
For those of you who celebrate Valentine's Day, I hope it's filled with love and candy!
- Shayna
February 9, 2011
I DID NOT ADD LINKS TO MY POSTS!
I was checking my blog the other day and I noticed that ads are linking to words in my posts. I did not sign up for this and I am trying to remove these links from my blog!
I think the ads are coming from Blogger/Google's AdSense program but I did not sign up for this and I cannot figure out how to remove it from my posts. I searched the HTML code and I cannot figure out how they have linked into my blog! HELP!
If anyone can give me any advice that would greatly appreciated.
- Shayna
I think the ads are coming from Blogger/Google's AdSense program but I did not sign up for this and I cannot figure out how to remove it from my posts. I searched the HTML code and I cannot figure out how they have linked into my blog! HELP!
If anyone can give me any advice that would greatly appreciated.
- Shayna
February 2, 2011
Pins and Needles - Paresthesia - ER
Monday, during carpool, my left arm started tingling and felt so incredibly painful. I was going to just let it go but with my Essential Thrombocythemia (which can cause blood clots, etc.) I was very worried. I have had this pins and needles sensation since the beginning of my diagnosis.
Pins and needles in my left foot, was what made me go get blood work done with my doctor. I thought that I would be diagnosed with Diabetes because I had gestational diabetes when I was pregnant with my last child. Needless to say it was not Diabetes.
The doctors say the pins and needles sensation is caused from my blood sludging / thickening from the high amount of platelets I have in my body. Most of time it's just annoying but on Monday it felt horrible, painful and the sensation traveled from my left arm to the left side of my face and head.
I went to the ER and they did another CAT scan and an ultrasound of the veins in my left arm. They found nothing, which is good news. I was released that evening.
I really want the 2500mg of Hydroxyurea to start working so that my platelet numbers will come down! Think good thoughts!
I go back to the doctors on Tuesday and I will post another update.
Thank you for letting me share my journey with you.
- Shayna
Pins and needles in my left foot, was what made me go get blood work done with my doctor. I thought that I would be diagnosed with Diabetes because I had gestational diabetes when I was pregnant with my last child. Needless to say it was not Diabetes.
The doctors say the pins and needles sensation is caused from my blood sludging / thickening from the high amount of platelets I have in my body. Most of time it's just annoying but on Monday it felt horrible, painful and the sensation traveled from my left arm to the left side of my face and head.
I went to the ER and they did another CAT scan and an ultrasound of the veins in my left arm. They found nothing, which is good news. I was released that evening.
I really want the 2500mg of Hydroxyurea to start working so that my platelet numbers will come down! Think good thoughts!
I go back to the doctors on Tuesday and I will post another update.
Thank you for letting me share my journey with you.
- Shayna